Tag: Alex

For several days Alex has been asking if we had received the letter he sent us. So far we haven’t. When he learned that we still didn’t have it during our Christmas call today he apparently decided to quit waiting for it to arrive. At the end of our call he sent a chat message…

Insurance came back rejecting further coverage for Alex at the residential facility but his care team has chosen to appeal that and have given us another week before we would have to commit to private pay or else bring him home. I’m hopeful that by the end of another week we can feel good about…

We got word back that insurance has met with Alex’s care team but have not made a determination yet so we have at least 1 more day even if they do choose not to authorize continued care. Laura and I still see value in continued care but we are also more prepared if it does…

I got word today that insurance was asking to meet with someone from Alex’s care team before they determine if he will be authorized for longer. If they don’t authorize more he could come home as soon as Friday. My gut reaction was to worry that if he came home now he would revert back…

I don’t know what to say about today. Alex called twice today. The first time he really wanted me to give him a timeline of when he would be finished at Newport. I told him that I didn’t know and that even when I do finally know something we have been instructed not to talk…

I managed to make some progress this morning. Last night Laura informed me that Enoch had (again) concluded that our deal was broken because of me telling him on Wednesday what the consequence would be if he came home from school again. This morning I talked to him about it and invited him to suggest…

Once again my annual review provided a raise large enough to cover the increased insurance premiums for the coming year. I also got to talk to the psychiatrist who is working with Isaac now. He’s already thinking of shaking up the medications. I sent him the results of the generic testing we had for Isaac.